The aim of this study was to describe how young adults with type 1 diabetes experience other persons reception. Living with a long-term illness such as type 1 diabetes influences daily life for young adults and their close relatives to a great extent. In order to live and manage daily life with a long-term illness, support is important and crucial. The study has a qualitative design. A purposive sample of twelve young adults (eight women and four men) with type 1 diabetes were interviewed. The interviews were analysed using a qualitative thematic content analysis. Young adults with type 1 diabetes experience both support and being discredited when meeting others. They emphasise the support they receive from parents, co-habitants and young adults in a similar situation. This entails feelings of a natural understanding and not being alone. In contrast, young adults with type 1 diabetes also experience being misunderstood and the problematic situation that relates to a lack of knowledge from people around them and healthcare personnel. This entails feelings of not being confident when meeting others and healthcare personnel. This study highlights the need for support and understanding amongst young adults with type 1 diabetes and their families from first and foremost the healthcare services. Society and healthcare services need more knowledge about type 1 diabetes so young adults with type 1 diabetes can receive support and care matching their needs. This is important for strengthening their health and well-being.
Young Adults Living with Type 1 Diabetes Experience of Other Persons Reception, American Journal of Nursing Science.
Vol. 8, No. 2,
2019, pp. 68-74.
Dabelea, D. et al. (2017) Association of type 1 diabetes vs type 2 diabetes diagnosed during childhood and adolescence with complications during teenage years and young Adulthood. Journal of American Medical Association, 317 (8): 825-835.
Federation ID. (2017) IDF Diabetes Atlas. IDF Diabetes Atlas.
Swedish National Diabetes Register. Annual Report,. 2017.
Carlsund, Å., & Söderberg, S. (2018). Daily life with Type 1 Diabetes from the perspectives of young adults and their close relatives. American Journal of Nursing Science, 7, 4, 115-120.
Abdoli, S., Hardy, L. R., & Hall, J. (2017). The Complexities of “Struggling to Live Life”. The Diabetes Educator. 43, 2. Doi: 10.1177/0145721717697245.
Juuso, P., Skär, L., Olsson, M., & Söderberg, S. (2014). Meanings of being received and met by others as experienced by women with fibromyalgia. Qualitative Health Research, 24 (10). 1381-1390. Doi: 1381-1390. 10.1177/1049732314547540.
West, C., Stewart, L., Foster, K., & Usher, K. (2012). The meaning of resilience to persons living with chronic pain: An interpretive qualitative inquiry. Journal of Clinical Nursing, 21, 1284-1292. Doi: 10.1111/j.1365-2702.2011.04005.x.
Skuladottir, H., & Halldorsdottir, S. (2011). The quest for well-being: Self-identified needs of women in chronic pain. Journal of Caring Sciences, 25, 81-91. Doi: 10.1111/j.1471-6712.2010.00793.x.
Olsson, M., Skär, L., & Söderberg, S. (2011). Meanings of being received and met by others as experienced by women with MS. International Journal of Qualitative Studies on Health and Well-being, 6 (1), 5769. Doi: 10.3402/qhw.v6i1.5769.
Jumisko, E., Lexell, J., & Söderberg, S. (2009). The meaning of feeling well in people with moderate or severe traumatic brain injury. Journal of Clinical Nursing, 18, 2273-2281. Doi: 10.1111/j.1365-2702.2008.02738.x.
Juuso, P., Skär, L., Olsson, M., & Söderberg, S. (2013). Meanings of feeling well for women with fibromyalgia. Health Care for Women International, 34, 8, 694-708. Doi: 10.1080/07399332.2012.736573.
Baxter, K. (2012). Changing choices: Disabled and chronically ill people’s experiences of reconsidering choices. Chronic Illness, 0, 1-17. Doi: 10.1177/1742395312460410.
Balfe, M., Doyle, F., Smith, D., Sreenan, S., Brugha, R., Hevey, D. & Conroy, R. (2013). What`s distressing about having type 1 diabetes? A qualitative study of young adults` perspective. British Medical Journal of Endocrine Disorders, 13, 25. Doi: 10.1186/1472-6823-13-25.
Berg- Kelly, K. (2010). Transition: Bridge over troubled water? Acta Paediatrica, 99, 1782-1784. Doi: 10.1111/j.1651-2227.2010.02063.x.
Berg Kelly, K. (2011). Sustainable transition process for young people with chronic conditions: a narrative summary on achieved cooperation between paediatric and adult medical teams. Child: Care, Health and Development, 37 (6): 800-805. Doi: 10.1111/j.1365-2214.2011.01330.x.
Lindberg, B., & Söderberg, S. (2016). Standing on their own feet: Experiences of young people living with type 1 diabetes when entering adulthood – a qualitative study. International Diabetes Nursing, 12 (3), 79-85. Doi: 10.1080/20573316.2016.1170406.
Findley, M. K., Cha, E., Wong, E., & Faulkner, M, S. (2015). A Systematic Review of Transitional Care for Emerging Adults with Diabetes. Journal of Pediatric Nursing, 30 (5): 47–62. Doi: 10.1016/j.pedn.2015.05.019.
Peters, A., & Laffel, L. (2011). Diabetes care for emerging adults: Recommendations for transition from pediatric to adult diabetes care systems. Diabetes Care, 34, 2477-2485. Doi: 10.2337/dc11-1723.
Nygren Zotterman, A., Skär, L., Olsson, M., & Söderberg, S. (2016). Being in togetherness: Meanings of encounters within primary healthcare setting for patients living with long-term illness. Journal of Clinical Nursing, 25 (19-20), 2854-2862. Doi: 10.1111/jocn.13333.
Söderberg, S., Lundman, B., & Norberg, A. (1999). Struggling for dignity: The meaning of women’s experience of living with fibromyalgia. Qualitative Health Research.
Söderberg, S., Olsson, M., & Skär, L. (2012). A hidden kind of suffering: Female patient’s complaints to Patient’s Advisory Committee. Scandinavian Journal of Caring Sciences, 26, 144-150. Doi: 10.1111/j.1471-6712.2011.00936.x.
Olshansky, E., Sacco, D., Fitzgerald, K., Zickmund, S., Hess, R., Bryce, C., McTigue, K. & Fischer, G. (2008) ‘Living with Diabetes: Normalizing the process of managing Diabetes’. The Diabetes Educator, 34 (6), 1004-1012.
Cooper, H., Tekiteki, A., Khanolkar, M., & Braatvedt, G. (2016). Risk factors for recurrent admissions with diabetic ketoacidosis: a case-control observational study. Diabetes Medicine.; 33 (4), 523-528. Doi: 10.1111/dme.
Woods, N. F., & Catanzaro, M. (1988). Nursing research. Theory and practice., St. Louis, MO: C. V. Mosby.
Patton, M. (1990). Qualitative evaluation and research methods. Beverly Hills, CA: Sage.
Sandelowski, M. (1995). Focus on qualitative methods, sample size in qualitative methods. Research in Nursing and Health, 18, 479-482.
Malterud,, K., Siersma, V. D., & Guassora, A. D. (2015). Sample size in qualitative interview studies: Guided by informtion power. Qualitative Health Research, 1-8.
Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, London, New Delhi: Sage Publications.
Scholes, C., Mandleco, B., Roper, S., Dearing, K., Dyches, T., & Freeborn, D. (2012). A qualitative study of young people’s perspectives of living with type 1 diabetes: Do perceptions vary by levels of metabolic control? Journal of Advanced Nursing, 69 (6), 1235-47. doi: 10.1111/j.1365-2648.2012.06111.x.
Gunn, K. L., Seers, K., Posner, N., & Coates, V. (2012). ‘Somebody there to watch over you’: The role of the family in everyday and emergency diabetes care. Health and Social Care in the Community, 20 (6), 591-598. Doi: 10.1111/j.1365-2524.2012.01073.x.
Anderson, B. J., & Wolpert, H. A. (2004). A developmental perspective on the challenges of diabetes education and care during the young adult period. Patient Education and Counseling, 53, 347-352. Doi: 10.1016/j.pec.2003.03.001.
Johnston Taylor, E., Jones, P., & Burns, M. (1998). Quality of life. In I, Morlof Lubkin, (Ed.) Chronic illness, impact and interventions (pp. 207-226). Boston: Jones and Barlett Publisher.
Söderberg, S., Strand, M., Haapala, M., & Lundman, B. (2003). Living with a woman with fibromyalgia from the perspective fo the husband. Journal of Advanced Nursing, 42, 2, 143-150.
Cissna, K. N. L., & Sieburg, E. (1981). Patterns of interactional confirmation and disconfirmation In C. Wilder-Mott & J. H. Weakland (Eds.), Rigor and imagination. (pp. 253-282). New York: Praeger.
Thorne, S. E., Ternulf-Nyhlin, K., & Paterson, B. L. (2000). Attitudes toward patient expertise in chronic illness. International Journal of Nursing Studies, 37, 303-311.
Hillege, S., Beale B., & McMaster, R. (2011). Enhancing management of depression and type 1 diabetes in adolescents and young adults. Archives of Psychiatric Nursing, 25 (6), 57-67. Doi: 10.1016/j.apnu.2011.08.003.
Sparud-Lundin, C., Öhrn, I., & Danielson, E. (2009). Redefining relationships and identity in young adults with type 1 diabetes. Journal of Advanced Nursing, 66 (1), 128-138. Doi: 10.1111/j.1365-2648.2009.05166.x.
Polit, D. F., & Beck, C. T. (2016). Nursing research: Generating and assessing evidence for nurse practice. 10th ed. Philadelphia, USA: Lippincott Wiliams & Wilkins.